Help!!!!

I am applying for higher rate mobility I already receive the care component. I was looking through my medical letters for a doctor’s address and noticed that a lot of the medical reports contradict each other. One says I have begin hypermobilty another says I have severe EDS type 3. Another said I scored 3/9 on the beighton score and another says I scored 8/9.

One letter says I have POTS another says I get slightly flustered. One even says I have drug seeking behaviour (like it hasn’t been mentioned before lol) 

One letter says I have never dislocated (I wish) and another says I dislocate daily. One says I’m left handed while I’m actually right handed.

I was wondering is there a way that I can get a letter that is correct. No wonder I’m struggling to get any help let alone get my head round what’s going on. I would ask my specialist but I am not due to see him till god knows when. I phoned for appointment waiting time and was told I’m looking at 11 months for an emergency appointment. Do you think it would be a good idea to email him? I just need a definite letter to be able to claim right. With the letters at the moment the government are refusing to issue a bus pass because there’s so many contradictions, any ideas what I can do?

Well it’s been awhile. So quick update. Xmas was good so was new year. We all had fun and I got some really cute pics that I might upload later.


Connors had appointments for his eyes. We were pissed about by the doctors and eventually they have decided that in April he will have his right eye patched. We still haven’t been able to get his new glasses as apparently none of the opticians can make them. I told the doctor we went to see and she said that it was a load of rubbish.

My health has been up and down. Not so much dislocation and subluxes but more migraines at the moment. The latest one has latest over 5 days now. I’ve lost weight as I’m throwing up pretty much everything I eat. The tablets aren’t having enough time to work before they come back up. I’m trying to make an appointment with my doctor this week as he said about putting me on beta blockers to stop the migraines. It would be fantastic to not have them anymore as they render me completely incapable. It puts more stress on my family as my partner then has to look after me while looking after the house and Connor. Other then the migraines I keep getting colds soon as I recover from one I have caught another one. And this morning I managed to fall down the last 4 stairs. Woo go me! Only my wrist and ankle were dislocated so I was pretty lucky.

I can’t remember if I posted about my other blog. Mainly on needlecrafts. It’s called “Relentless stitching” and I think you can get to it through my profile page. I have updated there a lot more and you can see some of the projects that I have been working on.

Xmas Pics:

the kitten killed the xmas tree

So we dressed connor up as our new Xmas tree

playing

First time with santa

All hail my wonderful wrapping skills,i wonder what they could be

update

It’s been awhile since I last posted. So here’s the quick low down of what I have been up to in the time I have vanished.

I fell out of the bath. It’s easier said than done. Falling in the bath is easy falling out takes real talent, baby I have that talent!!! I managed to dislocate my knee in the process and have a few extra bruises to add the works.

We pulled up the carpet in the hall way which meant I have spent the last 2 nights out of my mind due to the chemical cleaner we had to use to get the sticky stuff up. I honestly can’t believe that stuff is legal....wow



Hallway



We have a new kitten... She’s roughly 9weeks old. So feisty, cute, and looks a damn sight better then when we got her. She was flea ridden had ticks under weight and couldn’t clean herself. In the 4 days we have had her she has learnt to clean herself, steadily putting on a little bit of weight. She is so clumsy as while trying to play with one of our other cats she fell off the table head first and busted her tooth so that now pointing the wrong way and is going to cost almost £200. To put right. We haven’t manage to find a name that suits her so please feel free to leave a comment or message me any name ideas or suggestions you have. If I choose a name from you then I will be giving you a little surprise, nothing big.

Kitten

It’s nearly Xmas. He he are you as excited as me? I can’t wait. We got our first lot of snow today. It was pathetic and within 2 hours had pretty much melted, but.....it snowed. Hopefully the first lot of loads. I’m not normally a snow person I like to look at it, but when I spend most of my life on crutches it makes things that are already hard for me seem impossible. Instead of clambering down the shop for some bread, I’m out travelling frozen wastelands looking for the lost treasure of some long dead pirate. Braving freezing temperatures, hidden patches of ice that are intend on slipping me up. Pretty to look at but deadly.

Pathetic snow

I have an appointment due to come through sometime next year with a neurologist. Should be interesting. It’s in London again which is going to be a problem but hopefully we get lost again. I can’t afford another £50. Taxi fair just because we didn’t know where we parked.

busy busy busy

My Aunt had a birthday BBQ this weekend, which was great to be able to go to a party and know that I’m not the only one that’s going to be covered in bruises bandages and on crutches. As most of her friends were too. No one looked at me funny when I dislocated my wrist trying to swat a giant wasp. (I got it too, with a lighter)

We went on our first family camping trip. Wow I thought camping was meant to be relaxing. All we did was stress out at each other, got lost, couldn’t find what we needed, as it was his bright idea to buy everything we needed on the way tent included. Ended up taking nearly 6 hours to do a hour and a half drive *face palm*. Dinner was crap, my son wee’d on me and was up screaming half the night. On the plus side I got pretty drunk which helped with the not liking camping and creepy crawlies. Also got to know my partners family and friends a bit more. Looks like well be going again. This time I’ll be taking more painkillers as managed to dislocate my rib, not too sure how but I think it maybe something to do with our camp bed. Or my partner’s brother coming into the tent early in the morning and shouting “FIRE” at the top of his voice.

My son had his first eye test. Not good results he needs glasses and maybe an operation. Not good the eye lady said he had the eye sight of an 80yr old not good when his not long turnt 2 . We should be picking up some temporary glasses which is half the prescription he needs till we can see a specialist. Connor seems to like glasses which are a good thing just wondering if the novelty is going to wear off, then we have hell trying to keep them on him. Or if as he will be able to see better his going to be into everything and anything and drive me mental as his going to be getting into trouble. We chose Mr Tickle glasses they look sweet but it’s so strange seeing him in glasses.