Support Dog

http://www.dailymail.co.uk/health/article-2097649/Byron-dog-makes-bed-fetches-milk-gets-money-cash-machine-disabled-owner.html

well worth a look :)

Hellooooo. It’s been ages I know. I have been mainly on my cross stitch blog. I’m a bad blogger.


In all honesty it’s been a shite few months but I’m not in the mood to go into all that now.



I’m still waiting for my tilt table and overnight tests. Most of the waiting has flown by so I’m expecting a letter any day now.

I have been keeping busy with Connor mainly doing arty things. We have made a paper mache pig. It’s been so much fun. Slow progress but fun. Hopefully tomorrow we will be able to start painting it! It’s been nice to have something I can sit down and do with my son. It makes the painful days pass quicker. So here is Mr Piggy. Connor named him, not bad for a 3 yr old. I wanted to call him pizza or chicken head but Connor wasn’t having any of it!



Mr Piggy

Connor glueing his hands

Mr Piggy ready for painting

We also did some hand painting in the garden. Which somehow turned into a paint fight? Soon there was paint everywhere. All over the garden all round the house. I stood there in the middle of it all and thought I really shouldn’t have worn my brand new white shorts!



Some of the paintings

We gave the shed a make over

The expression “when you hear hoof beats expect zebras”(( INFO)) is very well known in the EDS community. We even have our own ribbon which has zebra stripes!



The other week while we were food shopping I found these in Tesco’s. I fell in love with them. All three for roughly £5-6

Not all Drs are monsters!!!!

Well it’s been a month. I’m sorry.


Last week I had an appointment in London to see a professor in neurology. For once we were on time! He thinks I have secondary P.O.T.S and has asked me to come back before the end of the year for more overnight tests and a tilt table test. Information on P.O.T.S can be found HERE and information on the tilt table test can be found HERE. I’m sorry that they are taken from the internet but at the moment I’m having problems understanding it all and keep getting confused.

The professor was amazing. Funny, talkative, interested in everything not just my medical history but what I enjoy doing, what past jobs I’ve had, everything. I can’t wait to go back and see him. I would even go as far as to say he has restored my faith in doctors.