Funkey-ness

It’s been awhile. I know bad me. I got into a kind of funk and it’s been pretty damned hard to try and shake it.


We have one hell of a busy day tomorrow. 3 hospital appointments all regarding different things. Connor has his check up with a specialist growth doctor. I have a long-awaited appointment with my rheumy ad my partner has to have a tooth out. 1 doctors appointment for me for minor surgery. So it’s going to be a busy busy day.

The little things.

Hugs and kisses and smiles are what keep me going. No matter how much pain I’m in just one little smile, one “arms around the neck hug” one snotty wet kiss. Gives me the strength to fight back. When I’m in so much pain I’m crying in the toilet just a peck on the cheek from Connor and for him to say its all better gives me the strength to carry on. If it wasn’t for those little moments I would have given up a long time ago. His my everything. He truly is. See it’s truly the little things that can make your day worthwhile. Make all the pain disappear for a second. I am truely grateful for such a wonderful caring son.

The cost of a life

Ok so the snow turned out not to be quite as pathetic as I thought it would be. In fact I have about had enough now. It’s turned in to a nightmare. A real nightmare, so far 2 people have frozen to death. That’s the only two we have heard about so far but I’m sure that once the roads are open proplery more will be found. The 2 that have died so far, a man and a woman, was in there garden and must of fell not been able to get help and froze. Meals on wheels have been struggling to get to the people that they help; it’s only a matter of time before we find out how many have starved to death. These lives could have been saved. They did not need to die in such a poor way. Alone, cold, hungery, scared. All it would have taken is for someone to bother. I’m not on about the government, councils, or people that work for organisations such as meals on wheels. As far as I’m concerned they are doing their best. No, all it needs is for people to get off their arses. Yes snow is fun. Yes snow is cold and wet. Yes it’s dangerous. But how much effort would it take for someone to walk next door, down the road, or even phone and see if anyone needed help. Why can’t Joe bloggs next door go and ask Mrs. 92 if she has enough food, if her boiler is working properly? If you’re going down the shop why not ask the little old man who can hardly walk if he wants some milk or bread? Why not ask the mother with a newborn baby if she needs anything? Why think that someone else is going to do it. Not everyone has a family that can look after them and those that do may not be able to help. How much time and effort is it going to take? How many lives could we save if we as a nation got off our arses and done something about it. Everyone is complaining that they can’t get to work but how many people have you seen out there with a shovel helping to clear the streets? I have not seen one person. It doesn’t always take money to save a life most of the time it’s just time. Plain and simple. 5 mins here, 10 mins there, half hour cooking a meal for the man down the street.


Put yourself in there position. You’re old, infirm, unwell, have a new baby. How would you feel? Someone that reads this might be one of those. The person that is writing this is. I am disabled. I have a young child. I went out and asked complete strangers if they needed help. I phoned around friends and family and asked if they needed anything. If I can manage to struggle down the shop in the snow, with a baby, on crutches to get my nana some food why can’t everyone pull together? Why is it we are either too scared, embarrassed, or damn right stubborn, to ask for help or to offer it? Yes everyone that I asked if they needed help barr my nana didn’t. But the point is help was offered. I’m not saying go and ask your neighbours if they want their drive cleared, and when they say no, wait up till there asleep and do it anyway. That would be pointless and cold. But offer.

It could save a life.



Enough of the rant now. I know everyone’s properly sick of them now but have some snow pics:

warning:bad spelling

Wow thats a good start. I use microsoft word to write my blog then copy and paste after spell checker has done its magic. Its crashed. So i am truely sorry for any typos/spelling/grammer problems.


Ok so update time. I have done no arty bits no cross stitch no crocheting. I am how ever thinking abouta new project im hoping to start in january. Quilting. I have never tried this and have been reading up on it. I souds very complicated and i think will take me the best part of a year to complete. I have different ideas on the style of it but havent completley made up my mind yet.

My health isnt great. Even more so now the colder weather has started to kick in. all i want to do is sleep and watch the world go by. I love winter none the less. There is something about the way the streets are empty at night. Watching snow fall, my street flood, and then theres xmas!!! I cant wait for xmas to get here. The look on connors face as he opens his presents is gonna make the highlight of the year for me.

I am pleased to report that my mind is less frazzled then it was on my last post. Connor has managed to total his glasses again. This time by headbutting the wall as he fell over. Another trip up town for me asap. He is enjoyng nursery and has grown in so many ways since started bearing in mind this is his secound week. His speech is amazing his using animal nioses, his even sleeping better.

I will be adding a poll to here as soon as i can work out how to do it. Keep a eye out as it could improve things around here for you lot instead of my ramblings i will be adding new topics to the top bar thingy. I was thinking along the lines of informatin into EDS, tips and tricks, backstory, helpful pages and groups for informatin or help. Let me know what you think. As alot of the time i dont know what to write about.



Sorry again about my spelling. :)

Freedom

Isn’t all it’s cracked up to be. Connors hopefully enjoying his first half day at nursery. I’ve put it off for months even though I needed help. Now I’m sat at home alone listening to the washing machine on a spin cycle. I am bored senseless. His been there almost 3 hours now and I already have my shoes on ready to limp out the door and go get him. Don’t get me wrong I am more than happy to have some time to myself I even managed to do some of the housework. But now the house is just too quite. I am sure that once I get used to being able to pee without a 2yr old trying to pull up my trousers ill settle down a bit and maybe even attempt to make some friends or be really daring and have a cheeky little nap.


The thing people don’t understand when I say about my friends or the lack of is that keeping friends when you have a child is hard enough. Your no longer fun you, pretty much always smell of sick, and instead of a night on the town all you want is to sleep for more than 3 hours without having to do an arse change. Needless to say most my friends disappeared as soon as my bump arrived. Having a child and having EDS makes friends almost as rare as an honest politician. On top of the fore-mentioned there is also the different “elements” of the condition. I’m not just talking about the unsightly supports, the crutches or embarrassing “problems” in public but also the mental and emotional aspects of EDS. If they can get over the physical problems the mental ones are normally the thing that makes them skip my name in the phone book. Depression, anxiety, fatigue, pain. Most people don’t understand how isolated being disabled or being a parent can make you feel. Especially if they don’t have any experience of it. I’m not bitter or angry or even that upset about it now. I have always liked my own company. I just wish that instead or someone thinking”oh no I won’t invite her, she can’t do it” I would rather they let me decide after all it’s my disability, my choice. And just because I have said no once don’t think that I’m always going to say no, maybe the last time you was kind enough to ask I was laid up in bed where as this time I’m ready to shake my booty till something pops!!