Tuesday, 22 February 2011

EDS in the media

Does anyone watch Casualty? This week’s episode had a patient with EDS type 3!!!!

I’m afraid to say I was horrified by the portrayal that was used. The patient was a junkie who “purposely” dislocates his shoulder to receive morphine. It makes us look great doesn’t it? One doctor classed him as a frequent flyer and said that he had drug seeking behaviour. How many of us haven’t heard that line before!

So after the new clinical lead relocates his shoulder, with no pain relief, and no warning, she says “well he won’t try that again”

I have to say it’s quite an accurate portrayal of a doctor dealing with an EDS patient. It’s sickening.

I was hoping to make a short clip but it doesnt seem that its going to be ready any time soon. If i manage it i will upload it.
The patient I am on about is roughly 10 minutes in.

  (video from you tube. I do not own this)

In other news I have to go back to the dreaded dentist. I’ve lost two fillings in the last day L wish me and them luck.

Wednesday, 2 February 2011


It’s been awhile. I know bad me. I got into a kind of funk and it’s been pretty damned hard to try and shake it.

We have one hell of a busy day tomorrow. 3 hospital appointments all regarding different things. Connor has his check up with a specialist growth doctor. I have a long-awaited appointment with my rheumy ad my partner has to have a tooth out. 1 doctors appointment for me for minor surgery. So it’s going to be a busy busy day.

The little things.

Hugs and kisses and smiles are what keep me going. No matter how much pain I’m in just one little smile, one “arms around the neck hug” one snotty wet kiss. Gives me the strength to fight back. When I’m in so much pain I’m crying in the toilet just a peck on the cheek from Connor and for him to say its all better gives me the strength to carry on. If it wasn’t for those little moments I would have given up a long time ago. His my everything. He truly is. See it’s truly the little things that can make your day worthwhile. Make all the pain disappear for a second. I am truely grateful for such a wonderful caring son.