EDS in the media

Does anyone watch Casualty? This week’s episode had a patient with EDS type 3!!!!

I’m afraid to say I was horrified by the portrayal that was used. The patient was a junkie who “purposely” dislocates his shoulder to receive morphine. It makes us look great doesn’t it? One doctor classed him as a frequent flyer and said that he had drug seeking behaviour. How many of us haven’t heard that line before!

So after the new clinical lead relocates his shoulder, with no pain relief, and no warning, she says “well he won’t try that again”

I have to say it’s quite an accurate portrayal of a doctor dealing with an EDS patient. It’s sickening.


I was hoping to make a short clip but it doesnt seem that its going to be ready any time soon. If i manage it i will upload it.
The patient I am on about is roughly 10 minutes in.

  (video from you tube. I do not own this)

In other news I have to go back to the dreaded dentist. I’ve lost two fillings in the last day L wish me and them luck.

:'( bad week :'(

It’s been a long terrible week. So many times I have ended up in tears wondering what’s the point of it all. I have been in amazing pain due to my EDS, and to top it off I’m still having problems with my teeth. Trapped nerves again this time in another tooth. The filling started to “bubble” and has started to fall out. That’s when the pain was at its worse. I also ended up with an abscess just above the tooth in question. I phoned my dentist surgery who done the work. Begged them for an appointment, explained the pain I was in was unbearable even with taking countless painkillers on a daily basis anyway. Eventually they agreed to give me an emergency appointment in mid December. That’s over a month and a half away thanks allot Gibraltar house. Starting to think it might be a better idea to have all my teeth removed and have false ones then I know I’m not going to get any more problems with them. But knowing my luck I would forget where I put them.


I have lost most faith in family and friends this week too. I don’t know if it’s because I was already depressed or it’s what’s causing the depression. I feel like I’m fighting all the time. Fighting to keep strong, keep the house reasonably tidy, to get people to understand that yes; yesterday I could walk to the shop but this moment in time I can’t get off the sofa, fighting to make my partner understand. We have fallen out many times this week over things that normally wouldn’t be worth sighing about. I am fed up of the countless number of times I have gone out my way to help my family giving up most of my childhood to look after my mum who became disabled due to EDS while I was still in school. Yet whenever I ask them for help I am made to feel guilty, like I’m taking advantage or I’m a bad mother. I am fed up of it all and I am fed up of being fed up.

That’s why tonight I have decided to crawl, yes literally, out of my pit of despair and have started yet another crochet project. This time it’s for my sister as a Xmas present. She is really into all the emo/ Goth stuff that’s going on at the moment. So I decided to crochet her a stripy “moody” scarf. I’m making good progress considering I only started 2 hours ago. So far I’m on my 6 row of colour. I hope she likes it, my dad was worried she might think it was old grannyish. If I can get it finished in time then I will make her some fingerless gloves or arm warmers as she’s mental over those too at the moment. Ill upload some pics when I can find the memory card for my camera. I know I had it last week as I uploaded pics here. Hmmmmm maybe its behind the fridge......

I’m excited and somewhat apprehensive about next week. Guess what were doing.....potty training. I gave it a trail today and Connor managed to pee in the potty twice. Admittedly he peed over other places but came and told me which is a good sign. I think it will go ok. His got the sensation most the time so I guess just see how things go. If anyone has any tips please feel free to leave a comment.

Crap dentist

So after being in agnoy for the last month, i finally went back to the dentist about my fillings i had done. I thought at first i had got a infection, or needed another filling. The pain i was in was unbearable. I was sweating constantly,crying and felt sick. The dentist had a quick look and said it was a trapped nerve, from where the other dentist had put the fillings in wrong!! Grrr now i have to be sedated again to have the filling taken out and relieve the pressure. Fucking asshole

Dentist update

Its been a few days since i had the dreaded dentist. Im slowly starting to remember things that i had forgot,silly little things really. The car ride up there managing to smoke nearly 6 cigerates in half hour, i feel sorry for the dentist as i didnt have any mints with me,which will explain why my lungs feel like i have been in a fire. The look on the sedative persons face when she asked about my medical history, hehe classic “what???” then having to explain in lamemans terms what EDS is and how it effects me. My dad rolling his eyes when she asked me how to spell it. The dentist warning me that if i am violent or abusive again he wont treat me. Honestly it was only once or twice.

I could finally feel my nose nearly 2 days later. I can smile normally, or what i count as normally its been a long time since i had the confidence to smile. Thanks to a addiction to energy drinks most of my front teeth had started to rot. So i stopped smiling. It feels weird to start again. A nice weird though. My teeth are super sensitive, i must be the only person to carry a straw around with me so i can drink without pain. Its slowly getting better, i had ice cream today which killed but was so worth it.

My partner goes back to work tommro. His been at home for a week as he had to use holiday up. Its the longest we have ever spent together,gonna miss him when he leaves tommrow. But will be nice to have time to dance around in my undies without him thinking im mad.

Demon dentist

I had the dentist today which went better then i thouhgt. i had visions of it being more like this :

luckly the sedation went really well and within 3 hours i was on the way home. It took over 6 hours for the numbing stuff they used to wear off. 6 hours of not being able to feel my nose, why my nose in not sure but it was completly numb. Everytime i smiled i looked and felt like i had-had a stroke, my left side of my face wouldnt move.Parts of it was twitching.
well im off to watch a film. With candles i really am spoilt sometimes!