Wednesday, 19 October 2011


I am applying for higher rate mobility I already receive the care component. I was looking through my medical letters for a doctor’s address and noticed that a lot of the medical reports contradict each other. One says I have begin hypermobilty another says I have severe EDS type 3. Another said I scored 3/9 on the beighton score and another says I scored 8/9.

One letter says I have POTS another says I get slightly flustered. One even says I have drug seeking behaviour (like it hasn’t been mentioned before lol) 

One letter says I have never dislocated (I wish) and another says I dislocate daily. One says I’m left handed while I’m actually right handed.

I was wondering is there a way that I can get a letter that is correct. No wonder I’m struggling to get any help let alone get my head round what’s going on. I would ask my specialist but I am not due to see him till god knows when. I phoned for appointment waiting time and was told I’m looking at 11 months for an emergency appointment. Do you think it would be a good idea to email him? I just need a definite letter to be able to claim right. With the letters at the moment the government are refusing to issue a bus pass because there’s so many contradictions, any ideas what I can do?

1 comment:

  1. Hello Krystaline,
    I have never herd of EDS or POTS. Thank you for educating me about it thru google.
    I am highly allergic to wheat, have hayfever and I used to get migraines really bad when we livedin germany. At that time I did not know that I was allergic to foods. So I am also called a Celiac. If you are allergic to grass, trees and wheat then you are a celiac. For the past 6 years I have been modifying my food. No wheat for me so the headaches went away. But If I accidentally eat something with wheat in it I get a headache immediately and I do not eat that offending food anymore. Try going gluten free. Maybe just maybe it could help a little.
    Many hugs and kisses, conny