Not all Drs are monsters!!!!

Well it’s been a month. I’m sorry.


Last week I had an appointment in London to see a professor in neurology. For once we were on time! He thinks I have secondary P.O.T.S and has asked me to come back before the end of the year for more overnight tests and a tilt table test. Information on P.O.T.S can be found HERE and information on the tilt table test can be found HERE. I’m sorry that they are taken from the internet but at the moment I’m having problems understanding it all and keep getting confused.

The professor was amazing. Funny, talkative, interested in everything not just my medical history but what I enjoy doing, what past jobs I’ve had, everything. I can’t wait to go back and see him. I would even go as far as to say he has restored my faith in doctors.

Funkey-ness

It’s been awhile. I know bad me. I got into a kind of funk and it’s been pretty damned hard to try and shake it.


We have one hell of a busy day tomorrow. 3 hospital appointments all regarding different things. Connor has his check up with a specialist growth doctor. I have a long-awaited appointment with my rheumy ad my partner has to have a tooth out. 1 doctors appointment for me for minor surgery. So it’s going to be a busy busy day.

The little things.

Hugs and kisses and smiles are what keep me going. No matter how much pain I’m in just one little smile, one “arms around the neck hug” one snotty wet kiss. Gives me the strength to fight back. When I’m in so much pain I’m crying in the toilet just a peck on the cheek from Connor and for him to say its all better gives me the strength to carry on. If it wasn’t for those little moments I would have given up a long time ago. His my everything. He truly is. See it’s truly the little things that can make your day worthwhile. Make all the pain disappear for a second. I am truely grateful for such a wonderful caring son.

Wow it’s been a busy 9 days. Been doing lots of cross stitch. Done half a tree and some of the sky the wolf has his back ridge....kind of. I’ve been trying enterlac again I think I’m getting the hang of it. Still not how I think it should be but it’s looking more even. My son has been trying too eventually he got bored and started using them as drumsticks.

 

Cross stitch so far





Connor crocheting....kinda



Had appointment with a specialist in London. Travel was a nightmare, my son was a nightmare, and the appointment was a nightmare. Not particularly happy so I’m making an appointment with my rheumy tomorrow morning. I was happy with the person I saw today asking for blood tests and x-rays which had all been completed with-in 2 hours. Normally I would have to make another appointment to have them done so was amazing to get them done in one go. We had MacDonald’s for lunch which we had to eat sat on the pavement as there was no seating; I ended up with a hell of a numb bum. I have a lovely bruise from the blood tests, 2nd time lucky she managed to get blood from me. First time in years anyone has managed it that easy.

Blood test bruise